30. One Year Later

Just one year ago I was in Tanzania, Africa with a team of nine individuals who were destined to climb Mt. Kilimanjaro for the Michael J Fox Foundation for Parkinson’s Disease Research. I think about my climb almost every day of my life. My reflections vary from day to day. Sometimes I think about the beauty of the natural features in the four climate zones we had to trek through. The scrubby brush of the moorland was speckled with beautiful flowers and fun rock formations. Even in the desolation of the alpine desert and arctic zones there was great beauty. The sunrise at over 18,000 ft. was spectacular! The view of the world below from 19,341 ft. was breathtaking. The flowers and vegetation particularly around the oases were very pretty. The rain forest with it’s dense greenery and moss hanging from the limbs and the black and white colobus monkeys were unusual and fun. The clarity of the stars at night was awesome and made me feel small yet very connected to the universe at the same time. The feeling of reaching the summit at 19,341 ft. was overwhelming and exhilerating. I felt like I had been awarded an Olympic gold medal. But at other times I reflect on how arduous the week of camping in small tents, using primitive toileting equipment, sleeping on a thin pad and dealing with the ever present dust was. Hiking in thin air was very taxing and on summit night it was freezing cold. Sometimes, I relive how difficult it was to breathe while climbing steep grades covered in scree.

But, I feel the part of the trek that has stayed with me the most is the level of comraderie that I developed with the other 8 hikers and with the crew. Our group of 9 has stayed in close touch with each other all year and frequently text one another. Some of us have gotten together in person to reminisce and share time together. We fondly call ourselves the “Kili 9”. Four of us are planning to be together on August 14, the one year anniversary of reaching summit. I’m sure we will have fun recalling various aspects and moments of our climb. We’ll undoubtedly talk about events in our lives over the past year and plans for the coming year. The bonds of the relationships are very strong and offer a high level of support. Many of us have stayed in contact with certain key members of our crew. Jo even organized getting some of the crew into guide school and English classes so they could apply to guide school. She also organized getting a huge amount of clothing and gear to our guides and porters who so kindly took great care of us on our expedition.

I continue to be involved with the Fox Foundation. I participated in a 10K at Walt Disney World on it’s behalf this past January with plans to do so again this coming January. We were honored to be the keynote feature at their MVP Awards Gala event held in NYC this past April. I remain in touch with some of the staff at the Fox Foundation. Who knows. I may do another climb with them next year but not Kilimanjaro again. I’ve been there and done that.

I have given presentations of my climb to various groups with more scheduled. People have been very receptive to my story and have been very supportive. I will continue to advocate for those affected by Parkinson’s disease. I also continue to plan weekly hikes for my group of hikers. It has been an incredible year of life changing experiences. I will continue to live life fully and vibrantly as long as I can. I just need to remember to put one foot in front of the other and keep going. Thanks to all who have supported me in many ways as I travel this journey with Parkinsons’ Disease. May each of you find your way to live life to the fullest.

© Copyright 2024. Lucretia Pintacuda. All rights reserved. 

I’m still fundraising so if you feel impressed to contribute to my campaign here’s the link:

https://give.michaeljfox.org/fundraiser/5438589

29. The Michael J Fox Foundation MVP Awards Gala

Every year in April, the Michael J Fox Foundation hosts an awards gala to acknowledge the top fundraisers of the previous year.  Since our group of nine who summited Mt. Kilimanjaro raised over $150,000.00 collectively, we were all invited to attend the MVP Awards Gala and bring a guest.  Not only were we invited to attend the gala, which is held in New York City, but we were asked to be the keynote feature for the event.   Of the nine of us on the team, seven were able to attend the gala.  Betty Frances Thomason, the 19-year-old, and I representing the oldest on the team and one who has Parkinson’s, were selected to make the primary remarks on behalf of the team.  Betty and I agreed on a back-and-forth dialogue format for making our speech.  We worked hard to hone our remarks to be encompassing yet concise.  We were originally given seven minutes to speak but this proved to be too difficult, and we ended up having about 20 minutes.  Jo Simmons and Kristen Gillan also were to speak  about the efforts we made to give back to the guides and porters who so kindly cared for us on our trek.  

I booked my trip to fly out of Asheville around noon on the Friday of the gala weekend.  While sitting at the gate waiting to board my flight to Newark airport in New Jersey, an announcement was made that the flight would be delayed due to an earthquake in New Jersey halting all flights into Newark airport.  After more than one announcement about when our flight would leave, the airline representative made an abrupt announcement that we would be boarding in 10 minutes.  Apparently, an opening allowing our flight to land had just occurred and we needed to be on the plane, settled in our seats and ready to take off in about 20 minutes.  I have never seen a flight get all the passengers on board and buckled in as fast as we did that afternoon.  Fortunately, this would now have me into New York in time for the Meet and Greet gathering the Fox Foundation was hosting for all the attendees of the gala.  Jo Simmons who lives in Jersey City which is just across the New York harbor, picked me up and we made it to the Meet and Greet in time to mingle and enjoy reconnecting with our group as well as meet staff from the Fox Foundation and other fundraisers too.

On Saturday morning, we were treated to breakfast and then a symposium in which researchers from the Fox Foundation discussed lots of information about the research being done and the strides that had been made in 2023.  Thanks to the Fox Foundation’s research efforts, a newly discovered biomarker was discovered.  This is a test that can be done on spinal fluid or skin biopsies which will definitively diagnose PD.  This has great implications for future research efforts as now the subjects in the study can be conclusively diagnosed with PD.  Before this discovery, PD was a subjective diagnosis.  There are other implications for this discovery, but I will not discuss all the great work that has been done toward finding better understanding, treatments and eventually a cure for PD.  

The gala itself started at 4:00 p.m. that Saturday afternoon.  We had fun getting gussied up for the formal event.  It almost felt like getting ready for a high school prom.  It was amazing how good we all looked in dress up clothes, hair and makeup done, and big smiles on our faces.  I had purchased a pair of black glittery, rubber soled flats to wear with my sparkly dress.  I wanted to feel more secure with my footing than I thought high heels would give me.  

The order of events had awards presented to the top ten fundraisers first.  Then there were some special acknowledgements and remarks from the President/CEO of the Foundation. We were to be the last segment of the program.  Just before we were to go on stage I had a big urge to go to the bathroom.  Katie, our contact at the Fox Foundation told me to make it fast.  As I returned to the auditorium our group was already making their way to the stage.  I made it just in time and walked from the back of the room straight to the platform.  Whew!  

This is the YouTube link to the actual remarks.   https://youtu.be/1-lt2X9JJ94

Screenshot

The next morning, we gathered outdoors for a Fun Run along the Hudson River with many members of the Fox Foundation and other fundraisers.  It was a beautiful day and the skyline of Jersey City and Hoboken across the river was magnificent.  Our group gathered one last time for breakfast together before heading back to our homes. I stayed on a day longer to spend more time with Jo at her home.  The next day was Monday, April 8 and New York was in the pathway of a partial solar eclipse.  Jo took me walking along the Highline and to the Island to see beautiful flowers and views of NYC.  Then we watched a partial eclipse from Liberty State Park on the New York harbor in Jersey City.  On the way back to Jo’s we stopped at an Italian bakery as I wanted to bring some delights home to my husband Jay.  The next day Jo took me to Newark airport where I boarded my flight back to Asheville.  It had been a thrilling and exciting time attending the gala, spending time in New York and best of all seeing the group I climbed Mt. Kilimanjaro with.  My life is forever changed and I will be forever grateful for all the Michael J Fox Foundation has done for me and all those dealing with PD.

My next venture is to run a 10K at Walt Disney World in January 2025 with the MJFF of course. My fundraising page is up and running.

https://give.michaeljfox.org/fundraiser/5438589

© Copyright 2024. Lucretia Pintacuda. All rights reserved. 

28. Update on Life after Kilimanjaro

It’s been seven months since I came home from Africa.  The journey to 19,341 ft along with the long flight home and ensuing jet lag took a lot out of me.  My recovery took at least a month or more.  To be honest, I’m not sure I’ll ever be back to where I was before the climb.  I have resumed a normal life though.  I continue to hike weekly and plan outings for my hiking club.  We’ve gone to some very beautiful destinations here in the beautiful mountains of western North Carolina. Just this week we went to the Green River Gamelands State Park and hiked along the Green River. The trail was abundant with the emerging spring blooms including Jack-in the- Pulpits, Bloodroots, Sweet Betsy Trilliums, and others.  I am grateful for every day I can get out and walk and hike on my own two feet.   

I continue to be an advocate for the Parkinson’s community.  I have a 60-minute power point presentation of my climb up Mt. Kilimanjaro that I have presented three times with more engagements on my calendar.  I’m seeking further opportunities to give this presentation so if you can help me find speaking engagements, I would appreciate your help.  I also went to Walt Disney World in January and participated in a 10K event on behalf of the Michael J Fox Foundation.  

Our group of nine who summited Mt. Kilimanjaro last August have been invited to be the keynote feature of the Michael J Fox Foundation’s MVP Awards Gala in New York City on April 6.  I will be speaking at the event along with others from our group.  I feel truly humbled and honored to be part of this happening. The climb changed my life forever.  I experienced the majesty of Mt. Kilimanjaro, a magnificent natural wonder. I watched the sunrise from over 18,000 feet. I saw the stars and Milk Way as I’d never seen them.  I felt connected to a greater force outside myself like I have never experienced before.  I found a new family there. I became part of an organization making a difference in this world.  And I have a connection to the people of Tanzania.  

I want to give you an update for those who contributed gear and funds to help our guides and porters who took care of us with kindness, respect, professionalism, and concern for our safety.  Jo and Kristen, two of the women who climbed, are in Tanzania now and delivered a mountain of items to the staff.  They were grateful beyond words for the boots, sleeping bags, water bottles, socks, jackets, pants, shirts, hats, and other items that will make their trips up the mountain safer and more comfortable.  Some did not have the clothing to keep warm or shoes to make their footing safer.  They shared water bottles.  Some didn’t have a sleeping bag to stay warm at night.  Many of you made a real difference in their lives and they want to say a huge thank you.  I want to thank you too.  This is what life is about – helping others along the way and sharing the journey.  

© Copyright 2024. Lucretia Pintacuda. All rights reserved

27. The Final Leg – August 15

This is the last chapter of my Climb Kilimanjaro adventure but not the end of my journey with PD. Look for more posts in the future.

As I settled into my sleeping bag on that 6th night, I was very glad it was the last night I would be spending in that tiny tent, on the ground, and without indoor plumbing.  Many people like me, with Parkinson’s disease, have sleep issues so I hadn’t really slept well the whole trip.  This was in addition to taking Diamox twice a day for the prevention of altitude sickness.  It works by being a diuretic.  I had climbed the Barranco wall, a 1000 ft. sheer vertical rock cliff where a slip could plummet one off the face to most certain injury or death.  We have since learned that the man we saw being carried out on the stretcher the day we scaled the Barranco wall died. I had climbed all through the night going from 15,300 ft. to 19,341 ft. in three miles to reach the summit.  All the hiking we had done had been above 11,000 ft. with most of it above 13,000 – 15,000 ft. We also learned that two other people died the same week we were on the mountain most likely from altitude sickness.   We had weathered sun, wind, cold, and steep, rocky, scree strewn trails.  Yet the most difficult part of the whole journey was taking care of the calls mother nature made and managing the small tent space.  At the beginning of the trek, I would look for a rock to hide behind to do my business but by midweek, I didn’t care who saw what.  Many people with PD have difficulty holding back when the call to pee comes.  My group learned early on that if I said I needed a “trail break”, I would need to answer the call very quickly or risk having an accident.  Diamox along with drinking a lot of water to stay hydrated, made these calls come frequently along the way and they came two to three times a night.  Pulling off to the side of the trail was easy compared to what I had to accomplish in the tent.  First, I had to get out of the warm and relatively comfy sleeping bag.  Next, was to get the tent entrance unzipped.  Getting the zippers to slide was a very difficult task and one that I rarely did by myself.  This meant that Jo had to wake up too and help get the zippers to work.  Often, we both had to work together pulling and fidgeting to get them to unzip.  Then I got my very dusty boots out of the bags in which they were stored inside the tent.  I would set them just outside the tent entrance and then try and get my feet into them which again, was never easy to do. By this time, I was struggling to hold the pee, but I still had to get my long johns down, squat over a bottle and hope the positioning was right to collect the pee.  Then I had to do the reverse order of pulling up the long johns, screwing the lid on the bottle, sit inside the tent with my shoes outside and get them off, store them back in the bags and get the zipper closed. This occurred two to three times a night in the dark, cold air.  Then it was dawn and the ritual of packing up the gear and dressing for the days hike started.  

On that last morning I was very tired and even felt weak when I woke up.  I found a clean shirt to put on and decided to wear long johns and leggings as we would be descending where it would undoubtedly be warmer.  As I was packing my duffel bag I couldn’t find the hard case for my bifocals which I wore in camp.  I had non bifocals for the trail so I wouldn’t be thrown off looking down on the trail. I needed to keep the bifocals safe, so I was desperately trying to find the case when January came to my tent and asked what I needed to get ready.  I told him I was trying to find the case but I’m not sure he understood.  I gave up and put the glasses in a secure pocket and hoped they wouldn’t get scratched.  By the time I got to the mess tent I only had time for a few bites of breakfast.  The crew was ready to get packed up as we had a good distance to cover that day to get out of the park.  The group made its way to the High Camp gatepost for a picture before beginning this last leg of the trek. Then back to our camping site where we were treated to our crew of guides and porters singing the Kilimanjaro song to us.  It was a fun rendition with each of us being named in the verses and members of the crew picked up Laura, Connie, Betty, me and pulled some of others to dance with them in the middle of the ring.  Everyone was happy and smiling on that sunny morning as we put on our daypacks and began the last leg of this incredible expedition. 

The Kilimanjaro song


The trail started out very steep with large rocks creating deep steps.  As I stepped down that first section I felt a sharp pain in my right butt cheek.  The pain was so sharp that my leg faltered causing me to wobble and I almost lost my balance.  At the same time, I felt lightheaded and dizzy.  I was bringing up the rear of the line with Abel right behind me who noted my stumble. He instructed Matthew to take my daypack and I told him I needed my poles to steady my gait.  So, Abel took my poles out of his bag and gave them to me.  I also got one of my GU gel packs and sucked out the sweet, gooey contents.  This gave me almost instant energy which enabled me to continue without feeling like I was going to faint.  But as I continued down the trail, the pain was almost unbearable.  I knew there was only one way off the mountain which was to put one foot in front of the other and keep going despite the pain.  I was hoping the pain would let up as I trudged on, but it did not, so I told Abel I needed to stop and get some Tylenol.  I knew I had some packed somewhere in my daypack, but I could not find it.  Abel said Alex had some so the group stopped while Alex found his Tylenol and I took two extra strength capsules.  Then I had a nature call.  By this time, we were out of the alpine desert and there was good enough vegetation to find a place of privacy.  I was still in a lot of pain and getting situated to accomplish emptying my bladder took time. Trying to squat was difficult so I took a while to do my business. When I returned to the group, Alex asked if I’d had a good pee.  I wanted to ask what made the experience a good pee?  Was it having the feeling of relief from a full bladder?  If so, then it was indeed a good one but everything about accomplishing the task was difficult.  Fortunately, my hikers back home had taught me the advantage of wearing panty liners to manage the drip on the trail, so I didn’t need to use TP.  This was invaluable to me for the entire time I was on the mountain. 

Beginning the last leg

A few hours down the trail we came to Mweka Camp.  We took a short break here and took another group photo beside the gatepost sign.  By this time my pain had subsided and as we continued down the path I was doing good.  We were now entering the rain forest.  The vegetation had transitioned to dense, lush trees, shrubs, and flowers.  The trail also transitioned to a steep, muddy, slick root laden path.  Some of the group took spills onto the muddy terrain but no one got hurt.  Once again, Matthew was by my side keeping me upright on the trail.  We saw black and white colobus monkeys in the treetops.  The colorful flowers along the way were very pretty and added a new dimension to the trail.  It was also getting warmer and fortunately for us it did not rain so we remained dry. Eventually the trail became more of a gravel road.  At last, after hiking about eight miles in six hours we came to the Mweka Gateway entrance of the Mt. Kilimanjaro National Park.  This was the end of the trail.  We had made it all in one piece.  We were exhausted but very happy.  As we stood at the gatepost sign to take our last group picture, the crew sang one more time the Kilimanjaro song.  I was so ecstatic that I was actually able to get a little move in my body as I sort of swayed to the tune.  There were a few concessions available and some of the group got sodas, beer, snacks, or souvenirs.  Before going inside the building to register our accomplishment officially with the National Park Service, the crew washed and scrubbed our muddy boots.  Then we logged our names into a book of records that would keep our accomplishment in perpetuity.   

Before we left the area, we had a tipping ceremony.  This is where we gave tips to those who had served us so diligently throughout the entire week we were on the mountain.  It is hard to describe how it felt to have these men and women work so hard to take care of our every need and desire with such respect and genuine kindness. To say I felt humbled and honored seems inadequate.  We had decided collectively ahead how much we would leave each person.  Laura prepared a speech that she read to the crew telling them about our mission with the Michael J Fox Foundation.  She told them how four of us actually had PD and the other five were hiking in honor or memory of a loved one.  She thanked them for their devoted service to us. Then she read the list of how much each crew member would receive from us.   The smiles and applause in response to their awarded monetary amount was very touching.  Then, we spread a tarp on the ground where we put items of clothing or gear that we were willing to leave behind for our crew to keep.  There are no mountaineering shops in Tanzania and even if there were most of them could not afford to buy the necessary items.  The porters make about $10.00/day while the guides make $15.00-$20.00 a day.  They are very grateful for whatever hikers choose to leave behind as that is how they obtain the necessary clothing and gear for themselves.  Some in the group left almost everything they brought for the trip declaring that they would never camp again.  Many left their sleeping bags, boots, jackets, poles, and various clothing items.  The crew members got to choose an item one at a time until most of the major items had been distributed.  It has been very rewarding to see pictures of some of our crew wearing some of the items left by our group.  It was especially wonderful to see one of the women crew wearing Jo’s jacket with the comment that now she was able to stay warm.  At the end of this post, I will leave a GoFund me account Jo started to help certain crew members meet some of their goals and an Amazon shopping list for items they need.  I invite you to participate in giving this Christmas by including our wonderful crew on your list.   The last group picture was of us with our crew.  Then we said goodbye to these individuals who had impacted our lives in a profound way and who will never be forgotten.   

The bus ride back to Moshi didn’t take as long as the ride out had taken as we were departing from a gate that was closer to Moshi.  Once there, we made a stop at a few ATMs to get cash for some shopping and other needs for the remainder of the trip.  Next stop was a restaurant for a hot meal.  We had eaten well on the trail, but this meal was really good and satisfying especially since I hadn’t eaten much for well over a day at this point.  When we checked into our hotel that night all I cared about was a hot shower, flush toilet and traditional bed with sheets and blankets.  It was a wonderful night after the best shower I have had in many years. After a week of not shampooing my hair the experience was pure pleasure.   The next morning, we enjoyed a great buffet breakfast with all the traditional items one would expect at any place back home.  Then some of us were off for some souvenir shopping.  I spent that afternoon relaxing around the pool and dining area of the hotel in the company of some of the others from our group.  Dinner that night was a grand event with a sumptuous buffet meal.  Then Abel and the three other guides had an award ceremony where we were given our official summit document.  There were speeches made, cheers and hoorays shouted out and lots of applause.  Each of us got our certificate plus a locally made sash placed around our neck.  I was the oldest climber so got my award first. The others were awarded in order of oldest to youngest.  Mark Kohus, Jo Simmons, Kristen Gillan, Justin Fields, Laura Aldrich, Connie Qian, Alex DiLalla, and Betty Thomason all got their certificate and sash with pride of a grand accomplishment.  Then there were pictures taken, hugs given, tears shed, and goodbyes said.  I was up by 5:00 a.m. the next morning to leave for my long flight back home.  I rode with Connie to the airport where we said goodbye and then I was off to be back in the air and airports for most of two days. Jo and I had one more opportunity for our paths to cross as we had about 2 hours in Doha, Qatar with overlapping layovers.  We hugged and cried as we said goodbye knowing we would be BFFS and that it would not be long before our paths would cross again.   

I arrived at the Asheville airport alone, very weary, a bit overwhelmed and ready to sleep in my own bed.  My husband Jay was there to welcome me home and offer big congratulations for such an accomplishment.  The next two days were spent mostly in bed sleeping and resting.  I am in touch with all eight of the other hikers and the four guides on our trek.  We are planning to participate in other Fox Foundation fundraisers in the future and are also planning a reunion for one year to the day after reaching the summit.  I remain in recovery mode and frequently look through pictures taken on our hike.  It was an incredible, magnificent, remarkable, difficult, tiring, strenuous but forever unforgettable experience.  I am very grateful to have gone on this life changing trip with the group of hikers and the remarkable crew that accompanied me.  My gratitude is grand for all who inspired, encouraged me, and generously contributed to my campaign for this journey.  My story isn’t over yet though so look for more chapters in the future.  I enjoy reading all the comments left on this blog so thanks to those who share their thoughts with me.  

Mission accomplished.

https://www.amazon.com/registries/gl/guest-view/13BY3FA83ZTXL

 GoFundMe https://www.gofundme.com/f/a-journey-of-empowerment-together-we-rise 

© Copyright 2023. Lucretia Pintacuda. All rights reserved. 

26. Part 2 – The Descent – August 14

I have had a hard time writing this next chapter in my expedition to climb to the summit of Mt. Kilimanjaro.  Getting to the top and then descending on the same day took everything I had to give, and I don’t feel that even 2 1/2 months later I have fully recovered physically, mentally, or emotionally.  I had imagined the exuberance I was going to feel when I got to that sign at the highest point and was surprised by my actual response.  I will try and convey the experience as it happened to me on that day.

The morning was bright with the sunlight from a cloudless sky above and a thin atmosphere that did not filter out as much of the particulate matter.  We had started our ascent the night before at 11:30 p.m. and hiked the very steep 3 miles and 4,000 ft. elevation gain ever so slowly.  Each step took a lot of effort, and my breathing was labored.  I could see the summit sign for quite a distance ahead as our group trudged on to our ultimate destination.  Jo was the first to get there with the rest of us close behind.  Then, I was there.  I was at the sign.  I had made it in 9 hours as our arrival time is recorded as being 8:30 a.m.  The tears started to flow uncontrollably.  I was overcome with emotion as I realized I had made it, but not by myself. I felt gratitude to Michael J Fox himself, the Michael J Fox Foundation, my fellow teammates, the guides, all my supporters from my hiking group who condition hiked with me, to friends and church members who were praying for me and had offered lots of encouragement.  I was grateful for my husband, my four children, my grandchildren, my husband’s sisters and their families, and my brothers and their families.  I thought of my friend Margie who died just two weeks before I left for Africa and who was a great source of encouragement in my pursuit.  It was a very humbling moment to realize how many and how vast my support had truly been.  I felt small, humbled, and undeserving that I was the recipient of such an outpouring of resources, encouragement, money, friendship, and love.  I also felt a calling to give back and continue the pursuit of finding the cure for PD and using my story to inspire others and bring awareness about PD to the many who do not realize the trials and difficulties that are often unseen but that those with PD live with every day.  There is a plaque near the sign that has an inspiring message to the world that brought more tears.  It seems like I was in this state for about 10 minutes.  I had wanted to make a short video expressing my gratitude to all who had helped me. When it was my time to have a few minutes at the sign for a photo, I was still in tears and my video isn’t the joyful one I had envisioned making.  Of course, I had to have a picture with my symbolic one-legged stance with my hands reaching upward.  Getting into that pose proved problematic.  I had trouble lifting my leg and then raising my arms over my head.  You might think this was because I was tired, or because the oxygen level was low or because I was having altitude sickness.  But it was not for any of those reasons.  No, it was because I was wearing four pair of pants, two long sleeve fleece shirts and a heavy parka!  I did stay in the pose long enough to snap the photo.  Each team member got their turn to take a solo picture and then we took the group picture.   It was a proud moment that all 9 of us had made it to the summit.  Before starting the descent, I took time to look down in the bowl of the crater and across to the other side of the rim.  It was a vast expanse of nothingness.  It was just dust and ash and desolation.  It was what I thought hell might look like.  One cannot stay at that altitude long so after about 30 minutes I started the descent back to Barafu Camp with Matthew by my side.

We soon encountered Kristen making her way down.  She was in distress with the look of terror in her eyes.  She looked right at me and said, “I can’t breathe”.  I noted the color of her lips and though slightly dusky not blue yet.  Also, I know that if a person can talk they are able to move air into their lungs.  But she said her lungs felt very tight and I knew she was in trouble.   Her altitude sickness had progressed to High Altitude Pulmonary Edema.  I tried to reassure her and clam her down but when a person can’t breathe it is very difficult for them to stay calm.  There were two guides with her that I did not recognize from our group.  Jo suggested they get supplemental oxygen for her which they did.  Matthew and I continued down the mountain stopping at Stella’s point to take pictures.  We were the only ones there so took several shots and then continued down the trail.  Jo was ahead of me and soon Kristen passed us with the two guides on either side of her body literally carrying her down the mountain as fast as they could.  I immediately had a plan in mind to help her once back at camp.  I don’t know if the other team members were ahead or behind me as we were not descending as a group at this point.  The deep volcanic scree made the trek down treacherous, and one could use their trekking poles like ski poles to “ski” down the slope.  Matthew rescued me from falling more than once as we made our way to camp.  We passed a woman from a different group sitting on a rock with her head supported and sound asleep.  A guide was sitting there with her as she slept.  I had full sympathy for why she was sleeping on the trail.  Then we came to a place where we could see our camp way in the far distance further down the mountain.  I was ready to be done with this hike!  I wanted rest and food and to get out of all those pants.  We were still at over 15,000 ft. elevation and even though we were descending it was very tiring.  I had eaten all my energy snacks and the pangs of being very hungry were strong.  I felt like a kid on vacation with her parents asking over and over, “when will we get there?”  At last, we arrived at our camp after about 2 1/2 to 3 hours for the descent.  I went straight for the mess tent.  Jo was there but I don’t remember anyone else being at the table.  I was looking forward to the nice, hot lunch that I knew would be waiting on the table when I arrived.  But to my dismay there was no food except a few pieces of fruit.  We waited hoping for lunch to be served but after an hour or so we went to our tent to rest.  The cook staff did not know when to expect us back in camp so apparently were waiting for direction to prepare a meal. I also looked for Kristen but she had been taken straight to the camp where we were spending the night and hadn’t stopped to pack her gear.  This meant someone else would have to pack her gear.  I knew I should offer to help Betty, her tentmate but had no energy and was grateful that Betty’s 19 year-old youth gave her the strength to pack up Kristen’s things by herself.  It was imperative to get Kristen to a lower elevation. My memory at this point gets very sketchy.  I believe we rested for a few hours before getting up to pack our gear and trek to the next camp where we would spend the night.  I remember thinking that I DID NOT WANT TO HIKE ANYMORE!  I wanted to stay put and sleep there for the night.  But we needed to get out of the altitude and further down the trail to make it out of the National Park the next day.  I have no memory of hiking anymore that day even though I know I did.  We must have hiked about another 5 miles and gone from 15,300 ft. to 12,900 ft. that afternoon.  In less that 24 hours we had hiked over 11 miles all above an elevation of 13,000 ft. with most of it above 15,000 ft.  We arrived at High Camp at dusk.  When I got to the opening of my tent, I collapsed face first onto the thin mat with my dusty shoes still on my feet stretching out the entryway.  Jo asked if I was going to the mess tent to eat.  I mumbled a weak no.  I had given everything I had that day and had no energy left to eat or unpack or move.  I don’t know how long I laid there before I managed to get my sleeping bag and mat spread out.  I think I took off two layers of pants and one shirt before crawling into my cocoon bag to sleep until the early morning wakeup call would put me back on the trail for one last day.  

© Copyright 2023. Lucretia Pintacuda. All rights reserved. 

25. The Summit of Kilimanjaro – August 14

I woke up in the morning still tired from the day before even though we got to “sleep in” an extra half hour.  We didn’t have such a long hike ahead of us to get to Barafu camp which was where we would start the final ascent to the summit of Mt. Kilimanjaro later that day.  Karanga Camp is at 13,100 ft. elevation and we would climb to 15,300 ft. elevation to get to Barafu Camp.  There we would have lunch and then rest for the afternoon and evening til 10:30 that night.  Abel told us that he usually let his groups sleep til 11:30 to get ready to start the climb at midnight but since we were slow we would need to get an earlier start.  

As we got on the trail, the mist of the early morning evaporated into a beautiful cloudless blue sky. The chilly air warmed up so we could shed our heavier jackets.  There was a breeze but not a strong wind.  The landscape of the trail was stern, rocky, barren, forsaken terrain that did not support much animal or plant life.  This was definitely the alpine desert climate zone.  We could see the top of Kibo peak off to the side of the trail on various stretches of the path.  This sight was a reminder of our goal and encouraged us to keep going forward.  At 13,000 ft. climbing to 15,000 ft. every step was an effort and every breath seemed like I was gasping for my last. We trudged on at a snail’s pace and took frequent breaks to hydrate and fuel our bodies.  We didn’t engage in as much conversation while moving but during the breaks resumed our laughs and stories.  At this point in the journey the nine of us had gotten to know each other in a way that often occurs when people band together for a mission and purpose that requires grit, determination, endurance, pain, and ultimate glory.  We had learned about each other’s families, jobs, travels, hobbies, and connection to Parkinson’s Disease.  We heard the trials that PD had brought to each of us and the difficulty and sorrow we had experienced.  Each of us were determined to make a difference in the search for a cure.  While our endeavor was to raise funds for research through the Michael J Fox Foundation, there was much more we wanted to accomplish here.  We wanted to raise awareness about PD by telling our stories.  We wanted to inspire others, not just with PD, but who face any adversity, to take charge of their destiny and get involved.  For me personally, I wanted to show that people with PD can live full, vibrant lives.  Hey, I have PD but I just climbed Mt. Kilimanjaro thus demonstrating a metaphor for facing the challenges of life.  In a few days I had a bond with eight people plus our guides and spanning a 50-year age difference that under normal circumstances might take years to form.  

We arrived at the Barafu Camp in the early afternoon.  After shedding our daypacks, we went farther up the path to the gate post for the obligatory group picture.  While it wasn’t that far up to the gate post from our camp, at 15,300 ft. it felt like a struggle to get there.  Back at camp, we spread out our sleeping bag and mat in our tent before lunch.  Abel came to our mess tent to give us our debriefing about how to prepare for the hike to the summit.  We were to wear four pair of pants, two pair of socks, at least two long sleeve fleece shirts, a wool hat, warm gloves with hand warmers in them, a parka, and a bright head lamp.  I told Abel that my leggings were still wet from when I rinsed them out on day two and thus I did not have four pair of pants to wear.  He asked me to bring them to him.  I know he sent them to the cook tent to have them dried over the stove.  Later that day they were dry and ready to wear to the summit.  I really don’t remember much about the rest of the afternoon so I must have gotten the rest and sleep needed for the final and certainly most difficult leg of this epic expedition.  

It was very dark and cold outside when 10:30 p.m. arrived that night.  I started getting dressed for the climb but that was not an easy task.  I struggled to pull my leggings over my long underwear, then my fleece pants over my leggings and finally the rain pants over the fleece pants.  Next came putting on the top layers and then the socks.  I had to loosen the laces on my boots to accommodate the extra socks and toe warmers I put in each boot.  Then, I put on the wool beanie hat and a head band that went over my ears on top of the hat.  I put on my bright blue parka and got out the neoprene face mask from my snow skiing days.  I had recharged the batteries on my gloves but must have left them on during the afternoon as the batteries to the gloves were dead.  Having cold hands and fingers is very difficult for me as they freeze up so that I can barely move them.  I could only hope the gloves would be warm enough without the batteries to provide extra warmth.  Once I had all my clothes on I had to get my boots on.  Needless to say, I was the last one to the table for the meal needed to provide energy as we made the assault on Kilimanjaro.  I was frustrated!  I still needed help to get my boot laces tied and my gaiters on.  So, I sat down and lost it.  I fumed about how small the tents were and how difficult they had made my life on this trip.  Everyone at the table quietly listened to my rant until I snapped out of it and said “enough whining”.  It was time to get it in gear and do what needed to be done to reach that pinnacle.  I grabbed a little food to eat from the table, gratefully accepted help getting my boots tied, the gaiters put around my ankles, opening the chemical warmers for my hands and feet, and my water bag filled.  Jo let me use her extra head lamp as mine was not very bright.  It was 11:30 p.m. on August 13 and we were ready to start the ascent of 4,000 ft. elevation in three miles to the top of the highest, free standing volcanic peak in the world.

It was a cold, crystal clear, moonless night as we lined up single file to start up the path.  Able led the group and I was placed next in line with Matthew close behind me.  As we started very pole, pole, or slowly, slowly up the trail I noted the brilliant stars above me with the constellations of Orion and the Big Dipper at the horizon so close I could reach out and touch them.  The lights of the town of Moshi twinkled below in the valley.  A single file line of head lamps from other groups stretched out before us going upward to the peak.  The imagery was like I was ascending to Heaven with the earthly lights fading in the distance.  It was very vivid and made me think of Jacob’s ladder.  I felt the presence of a higher power reaching from above to connect with my soul in a very real and almost tangible way.  

 We made our way in silence for the most part at first.  Then, Alex started having difficulty with his footing.  We paused to see what he needed.  It seemed that Alex was needing to redose his PD medication and this was undoubtedly more pronounced by the altitude.  Abel moved Alex to the head of the line behind him.  As we traveled upward, the lights of Moshi became dim, and the constellations moved across the sky.  The headlamps ahead of us spaced out farther away so we seemed to be alone on the mountain.  Others in our group were feeling the fatigue and effects of the altitude and demands of the trail such that they were not feeling well.  I was snacking on my high energy gummies and gels to give me strength and doing okay.  And then the first light of dawn appeared on the horizon.  I was awestruck and determined to take it in.  At first it was a hint of light and then a bright, glowing streak of orange across the longest horizon line I have ever seen.  I could actually see the gentle curve of the earth that the view from 17,000 ft. elevation gives.  I wanted to stay at that spot long enough to see the bright, glowing ball of the sun break through.  After taking many pictures, we continued upward.  It was bitterly cold at about zero degrees Fahrenheit, but the sun brought a welcome warmth for the rest of our ascent.  There was some wind but not so strong that it made hiking difficult.  It wasn’t long before we came to Stella’s Point, the first place on the rim of the crater along the trail.  Matthew said we needed to keep going to get to Uhuru Peak as by this time the group had spread out and since we couldn’t stay very long at the high altitude, we needed to get there as a group not as individuals.  It was about another hour of hiking along the rim to reach our destination.  So, by putting one foot in front of the other, I trudged on still feeling good.  The terrain was pure desolation with nothing but dry, volcanic space and gravel.  Off to the southern side we could see the top of the ice and glaciers we had seen while traversing the path below for the past several days.  The iconic sign was just ahead but every step took determination.  And then, I was there.  I was at the peak.  I was at Uhuru Point.  I was at 19,341 ft. elevation.  I was there beside that iconic sign.  I had made it on Tuesday morning August 14, 2023 at 8:30 in the morning after 9 hours of hiking through the night. This story will be continued in part 2 …  

© Copyright 2023. Lucretia Pintacuda. All rights reserved. 

24. The Barranco Wall – August 12

The morning came soon enough, and it was time to rise and shine and get going.  We didn’t have as far to go on this day, and we weren’t making a big elevation change to the next camp but getting there would require some dramatic up and down segments on the way.  To start, we would have to climb the famed Barranco wall which is a very steep zig zagging trail that would require using our hands to scramble in some areas.  We would be trekking above 13,000 ft. which makes every step a big effort.  We gathered at the gate post to get the group photo at the Barranco Camp before starting out and then began the hike.  We crossed a bridge over a stream with a pretty waterfall and I could not miss taking a photo of this sight.  Not far up the trail, we saw a group of crew members from a different group carrying a stretcher with a crew member lying on his back and being carried down the trail back to Barranco Camp. I could see one of his legs had a splint on it and knew he had injured it and would need to be helicopter lifted off the mountain.  It was a stark moment of realization that there was real danger doing this expedition, not just to us but to the crew members who make every journey of many hikers possible.  It was a reminder that there have been deaths trying to conquer the mountain and we needed to be careful and use caution.  Ahead and looking up I could see the single file of hikers making their way up the wall and felt a mix of excitement and dread.  I was so glad that Abel had assigned Matthew to guide my every foot placement and handhold as I knew he would keep me safe.  I was the first in line on the steepest places and got to watch the others make the ascent.  Once the group was up the steepest part I had a sense of great accomplishment and took a video of my exhilaration.  It was here we saw the helicopter fly in, land, and pick up the injured man from the Barranco Camp down below.  The next feat was to pass by the “kissing rock”.  This is a very narrow spot where one must brush right up against a large protruding rock with the trail dropping off steeply on the other side.  We literally kissed the rock as we slid by it’s hard surface.  Not far from this place the trail leveled off and had a spot with large boulders great for resting and taking a snack or nature break.  We could see the peak of Kilimanjaro also known as Kibo because that is the name of the highest of the three volcanic cones making up the mountain.  The Shira peak on the western side creating the Shira plateau where we had come and the Mawenzi peak to the east are the other two cones.  We were getting closer to our goal, and we could see the majestic peak.  By this time in the trek, we were getting quite well acquainted with our fellow teammates.  We shared stories of our life, our families, our current situations, our connection to Parkinson’s disease and our motivation for signing up for this epic trip.  There were moments of laughter, sadness, happiness, and revelations of hopes and fears yet ahead in our lives.  The mountain is barren and desolate, and it was hard to hide or have privacy both physically and emotionally such that I felt exposed often with the loss of dignity and had to trust my fellow hikers to respect boundaries and secrets revealed.  I know that for each of us there are things that will stay on the mountain forever and thus the bonds of friendship and camaraderie got stronger with each day and each advancement along the way.  

We had been ascending in elevation but our camp for the night was close to the same elevation as the previous night.  This meant we were going to have to descend the trail.  That was good news as it was more difficult for me to go up than to go down.  Each step took a lot of energy and left me panting and feeling out of breath.  The guides frequently would tell me to drink more water to help prevent altitude sickness.  I wondered how they thought I could breathe and drink at the same time as my body wanted air more than it wanted water.  The recommended amount of water to consume is about 3 liters a day. I was never able to get that much down and I think they finally gave up trying so hard to keep me adequately hydrated.  Yet, while others around me were feeling the pangs of altitude sickness, I still had not had a headache, nausea, or vomiting.  I feel certain that the prehike conditioning I had done many with my group of hikers back in North Carolina and often at elevations above 6,000 ft. had helped.  I was also taking Diamox as prescribed twice a day and eating the high energy snacks to provide fuel to my overworked cells.  As we descended the path, we came to a section that resembled a set from Jurassic Park.  It became very steep, and the terrain was very rugged with deep grooves in the sides of the mountain.  There were fairly large trees with moss hanging from bare limbs.  The varied hues in the rock and soil were red, green, brown, and gray.  There was a large section that was charred from fires that had occurred about two years ago.  There were beautiful desert-like flowers and plants.  It was dramatic, stark, beautiful, and eerie all at the same time.  The trail was a hard surface with the typical volcanic gravel making it easy to slide and lose your footing.  Once again, Matthew watched my every step keeping me safe on the way down this section.  We rounded a curve in the trail when Matthew pointed to a place across a ravine from where we were and said that was the camp for the night.  I could see we had quite a way to descend before crossing the bottom of the ravine and then hiking back up to the camp.  I wanted to sit down and not budge.  I was tired and this looked like a long way off yet to go.  But the other side of my brain kicked in and told me to take it one step at a time and get there.  Matthew and I were lagging a little behind the group, but we caught up as we ascended the trail to the camp.  It was a welcome sight to have the crew members greet us on our way up, take our packs, and gather around us to sing the ritual welcome song as we made it into Karanga Camp.  Though the evening fog and clouds were rolling in there was still light to get the group picture at the gate and then look for a spot to find connectivity on our phones.  The White Napped Ravens searching for crumbs from the camp looked rather ominous in the mist.  The usual tasks of setting up our gear in the tent, freshening up, having a hot meal, gazing at the spectacular starry sky, and settling in for the night seemed routine now.  My body yearned for rest night would bring.

 © Copyright 2023. Lucretia Pintacuda. All rights reserved. 

23. Shira Camp II to Barranco Camp – August 11

Jo’s alarm sounded too early.  It was dark outside and way too cold to think of getting up.  I let Jo start packing her gear while I stayed in my sleeping bag a little longer.  But the day’s adventure was ahead, and I needed to get moving.  So, I emerged from my sleeping bag and began the daily task of dressing, stuffing my sleeping bag into it’s sack, and putting on my shoes to begin the day.  Outside the zipper entry to our tent, I found my water bottle that I left just at the entrance and discovered it had partially frozen during the night.  Then, a crew member showed up with two bowls of hot water to use to freshen up.  Sometimes the daily bowls of hot water would show up in the evening but at least once a day we had water to cleanse our bodies.  I never figured out how to really use it well as I couldn’t bring the bowl inside the tent and I didn’t want to stand bare footed in the dirt outside the tent, so I would use a cloth and try and wipe the dust, dirt, and sweat from my body as best I could.  Once ready, I headed to the breakfast tent to join the group for our first meal of the day.  It was usually the same menu of hot oatmeal, fruit, pancakes, eggs, and a meat for protein.  The spreadable oil or margarine, Nutella and jam that were always on the breakfast table were so cold I could barely scrape a little onto a table knife.  I liked to add a little of the margarine to my hot oatmeal to add flavor and a few calories as well.  The Nutella and jam were a nice addition to the pancakes.  I would take my water bottle to the table, fill it with warm water and add some electrolyte powder.  Next, I would try and find some water to brush my teeth.  Since by this time, camp would be packed up, I would often use the electrolyte drink in my water bottle to wet my toothbrush and rinse my mouth.  Then I had to fill the Osprey water container that I carried in my daypack in addition to the water bottle.  I was always the last one ready to begin the hike,  but the others were patient with me and never complained.  

Our route for this day would start at Shira Camp II, travel back through the Temple of Cairns, lunch at Lava Tower and reach the Barranco Camp to spend the night.  Our starting elevation was about 12,600 ft. with Lava Tower at about 15,200 ft. and Barranco Camp at 13,000 ft.  We would be hiking about 9 miles, so it was a big day ahead.  When we got to the area of the cairn towers, we decided to build our own monument.  Since I was the oldest group member, I was to place the foundation rock and the others added their rocks in chronological order.  Once we finished making our cairn, we took a picture capturing the moment.  It was a brief moment as it toppled before we moved on with the hike.  The higher we got the terrain changed from the moorland to alpine desert.  It became more difficult to find cover for the trail breaks the Diamox demanded.  The plant vegetation all but disappeared and it became very barren and desolate.  It was a bright day, so the sun shined down on us but due to the elevation, it remained cool enough to leave our long sleeves and pullovers on. Most of the trail was a gradual climb and we moved at a snail’s pace.  As we got closer to our lunch destination at Lava Tower, I noticed that Laura was lagging, looked very pale, and stopped to get some medication from her daypack.  She had a headache and felt nauseated.  Since we were nearing 15,000 ft. elevation she was undoubtedly experiencing altitude sickness.  When we got to Lava Tower Camp our porters greeted us with the same happy welcome singing, took our daypacks from us and took pictures of us at the Lava Tower gate post. They had a hot meal waiting for us in the mess tent where we dined and rested before continuing on our way.  Others in the group weren’t feeling so well either so the food and rest were very welcome to refresh us before continuing to our camp for the night.

From Lava Tower the trail descended down an open area where the trail was mainly the volcanic gravel scree making it easy to slide and fall.  The rugged cliffs to the left of the trail were majestic and glowed in the afternoon light.  As we got close to Baranco Camp, we came upon an oasis with a stream flowing down the mountain.  The water cascaded over rocks and made waterfalls.  It fed beautiful desert plants turning the barren land into a beautiful, lush area.  I stopped to take pictures but January, our lead guide, took my phone, put it in his pocket and said we needed to hurry, or we would be hiking in the dark.  We arrived in camp just at dusk and the light on the mountain towering above us and peeking out from the clouds was a stunning sight.  The evening ritual of unpacking, dining, gazing at the beautiful stars, and snuggling down in my sleeping bag for the night was a little easier now that I was getting used to it.  It had been a long, hard, tiring day full of beauty and splendor and sleep came a little easier this night.

 © Copyright 2023. Lucretia Pintacuda. All rights reserved. 

22. Day 2 – Through the Temple of Cairns – August 10

Our wakeup call came at 6:30 that first morning.  It was barely dawn, quite cool outside and I didn’t want to budge from the cocoon of my sleeping bag.  We had an hour to get dressed, freshen up, pack up our gear and go to breakfast.  If unpacking our gear and laying out our sleeping bag and mat had been difficult, packing it all up was even more of a challenge.  I struggled every morning trying to stuff my sleeping bag into it’s sack while sitting on the floor of our tent.  There was limited room to sort through my belongings and find what I wanted to wear for the day.  Getting dressed had to be accomplished in sequences of steps.  I had to kneel to slide my long underwear down to my knees, then lay on my back or sit to get them off the rest of the way.  The reverse was needed to put the bottom layers on.  Of course, the top layers weren’t as difficult.  The next step was to get everything back into the duffel bag.  Ugh!  Socks went on last and to get out of the tent, I had to take my shoes out of the plastic bags used to store them inside the tent, set them outside the opening and figure out how to get my feet in them with my body still inside the tent and then stand up.  Jo decided after our first morning that we needed more than an hour to get this done and set her alarm to wake us up at least a half hour earlier than the wake up call each morning.  The thoughtful crew would bring your coffee or tea in a cup to your tent opening every morning so if you needed that cup of brew to help you wake up you could count on having it delivered to your tent door.  

But for me, it was off to the breakfast table in our mess tent to get my morning Hibiscus tea along with breakfast.  Each day there would be two thermos pitchers on the table, one had hot water for hot tea in individual packs or powdered hot chocolate.  The other pitcher had piping hot ginger tea.  Then we were served a breakfast of pancakes, eggs cooked to resemble a large, flat pancake, a large pot of porridge which was thin oatmeal, fresh fruit, and various bread selections.  I’m sure there was a meat selection as well, but I did not choose this option.  Before we left the table, the cook staff would bring a snack for us to take along for the day’s climb.   This was a box of mango juice, muffin, a package of dry biscuit cookies and a few pieces of hard candy.  Next, you had a short time to use the porta john, fill your water bottles, brush your teeth, and assemble for the day’s journey.

While we were eating breakfast the crew would be taking camp down and packing it up.  They would put our packed duffel bags on a tarp in the center of camp so they could pack up our tents.  Each crew member had their assigned duty.  There was the tent staff, cooking and food preparation staff, porta john staff, guard staff, and our guides.  As the various aspects of the camp were ready, the porters/crew would begin taking it to the next campsite.  The mess tent and porta johns which were two little, bright blue tents with a zip entry and housed a little porta potty, were the last to be packed up.  Once we were ready to go our head guide would start us on our next leg for that day.  As we would start our very slow pace, the porters and crew would pass us carrying very large packs often on both their backs and their heads. 

Our destination on day two was to get to Shria Camp II.  It wasn’t a very difficult hike for this day but to be honest, I lost all track of time, distance, and elevation gain.  I just followed the leader and put one foot in front of the other until we got to the next camp.   It seemed to be more of a gradual climb in a vast, desolate area where the vegetation was scrubby and dry.  There were white and yellow flowers along the way adding some color and interest to the landscape.  We made stops at times for water, trail breaks (emptying one’s bladder), and snack breaks.  As we neared the camp, the porters and crew came down the trail to meet us and carry our daypacks the remainder of the way.  Once we got to camp, the staff circled around and sang a welcome song where they named each one of us in the various verses.  This was a ritual that occurred each time we got to camp.  They always had a smile on their faces and took great measures to please and help us with anything that would make our journey lighter and easier.  They would be ready to dust off our boots and pants, help us find the tent where our duffel bag had been placed, take our gaiters off or literally anything we wanted or needed.  We were treated like royalty.  The mess tent would always be set up and as soon as we had our tent settled, there would either be a hot meal or snacks ready for our consumption.  On this day we arrived in camp early enough for a nice afternoon break, but after lunch, the head guide told us to gear up for a short walk up to a higher elevation.  He wanted to see how we would do going to 13,000 ft. and this would help us acclimate to the higher elevation we would be encountering over the next few days.  So off we went up the dry, stony, dusty trail to a place I called the Temple of Cairns.  It was full of stone cairn towers obviously stacked by previous hikers.  We rested at this destination for a while and then returned to camp for a snack of popcorn and peanuts before the main supper meal.  Between the snack and supper, I decided to rinse out some socks, undies, and the very dusty leggings I had worn that day.  It turned out to be a big mistake as most of the garments did not dry out for the remainder of the trek despite the very dry air.  I think it was too cold to let the bulkier things get dry.  I had counted on having the leggings to wear but had to make do with other lower body garments until the ascent to the top when I needed four layers, and our head guide sent my leggings to the cook tent to dry them by the stove so I could wear them on that final push to the summit.  

After supper Jo and I made our way to our tent and noted the clarity of the stars and once again saw that cloudy image we call the Milky Way.  It was just as amazing the second night as the first night we saw it.  I quickly fell asleep but was awake again in the night to go to the bathroom.  I was taking Diamox to help prevent altitude sickness and acting like a diuretic is a common side effect.  It was too cold to go to the porta john and so this had to be accomplished with some ingenuity in the tent or just outside the zipped opening in what we called the vestibule.  Then I had trouble going back to sleep as the sounds of the breeze causing the tent to flap and other noises that I thought surely must be wild animals just outside our tent kept me awake for much of the night.  At last, it was morning and time to pack up again and see what the day would bring. 

 © Copyright 2023. Lucretia Pintacuda. All rights reserved. 

21. The Beginning of the Trek – August 7

Three weeks ago today, on August 7, 2023, a group of individuals met in the town of Moshi, Tanzania.  We were to be a group of nine, but one individual had flight delays so would join us the following day.  We checked into the Panama Hotel which was not the one originally scheduled for our lodging.  We were to have double rooms but now we were three to a room for the women and the two men who were there had a double.  Alex who would join us the next day would get a single room.  The triple room was crowded with three beds, our suitcases, our duffel bags and all our stuff that ended up scattered around the room.  The shower did not have proper runoff, so the floor was very wet each time one of us showered.  I shared a room with Jo Simmons and Kristen Gillan who had accompanied me on the game park safari just before this meetup in Moshi with the group.  After freshening up, we went to the dining area to meet the rest of the team members over dinner and encountered a lovely, large rat along the pathway.  He was harmless and seemed rather friendly.  

Some of the group were already at a table and the others arrived shortly, to make a group of eight very tired, hungry, and anxious individuals about to embark on the journey of a lifetime.  The extensive menu had lots of vegetarian items that sounded tasty, so I ordered a guacamole sandwich.  Then we waited almost two and a half hours for our order to be served.  I was tired and hungry, and the wait seemed an eternity.  When it arrived at the table, I think I would have eaten just about anything.  It was satisfying but seemed more like three slices of bread with guacamole between the slices.  We were uncertain about drinking the table water, so we ordered bottled water.  We filled our water bottles from the bottled water and I think by the time we checked out we used up the entire supply of bottled water they had at the restaurant.   While we waited for the food to be served we had time to begin getting to know one another.  There was Mark Kohus, 52, diagnosed with early onset PD, Jo Simmons, 47, whose dad has PD, Kristen Gillan, 46, whose mom is in the end stages of PD, Justin Fields, 38, with early onset PD and a deep brain stimulator, Laura Aldrich, 35, whose father passed away with PD, Connie Qian, 32, whose father has PD, and Betty Frances Thomason just 19 whose dad has PD.  Alex DiLalla, 28, diagnosed a year ago just two weeks before his wedding with early onset PD, would hopefully join us the next day

The next morning, we met with the tour operator at breakfast, and he laid out our day ahead.  After breakfast we were going to walk to town and do some market shopping.  We ended up walking about six miles along dirt sidewalks and visited a small craft market where I purchased a few small souvenirs and then on to the big market in town. The sights in a market like this always fascinate me.  There were stands of fresh fruit and vegetables, big bags of dried beans, rice, spices, flour, and other items.  And of course, there were trinkets of bracelets, carved animals, earrings, paintings, and such that the vendors would beg us to buy from them.  I made a few selections, but we didn’t spend much time here as it was time for lunch.  I got to ride in a tuk tuk for a wild ride to our lunch venue.  It was outdoors on the lawn at a very nice place.  My eggplant sandwich was fabulous.  Here also, Alex joined the group.  Fortunately, we had a van take us back to the Panama Hotel where we were instructed to pack our duffel bag with the gear we were taking on the climb and meet in a conference room for orientation.

I worked hard to get all my gear packed into my duffel bag and then headed over to the meeting.  Most of the others were already in the room with all their contents out of their duffel bags and waiting for the head guide and tour operator to inspect our readiness for the climb.  I was dismayed that I was going to have to take everything out and then try and get it back in the bag, but I didn’t have a choice.  Fortunately, all my gear was approved, and the head guide recommended I could leave a few things behind.  Then came the task of getting it all back in the duffel bag and carrying it back to the room.  This was our first time meeting the hike leader, Abel Lauwo whose grandfather had led the first western mountaineer, Hans Meyer, to the peak of Kilimanjaro in 1889.  Abel was a very experienced guide, and we would be his 1021st expedition to the summit.  I knew we were in very good hands with Abel.  His expertise would keep us safe, and he would do everything possible to get our group of hikers to the top.  He would know the pace we needed to go, the signs and symptoms of altitude sickness and what to do for it and advise us what to eat and drink to stay healthy on this trek.  

I went to bed that night very excited that the next day, Wednesday, August 9, I would begin the expedition to the summit of the roof of Africa, the highest peak on the continent and the tallest free-standing volcano in the world at 19,341 feet.  After breakfast we got our bags ready, put what we weren’t taking with us in storage, took some group pictures and loaded onto the bus.  Along the way we passed a field with giraffes grazing and of course we had to stop and take pictures.  Next stop was at a gas station where we used the restrooms, and I found a man selling bandanas that I had to have.  Jo and I purchased nine of them so each member of our group could have one.  The stop seemed to be taking a long time.  The tour operator left us to go to a bank to get money to pay the entrance fee to Kilimanjaro National Park. There seemed to be an issue getting the cash out of the bank to pay these fees, so we continued without the tour operator to our destination. He must have worked out paying the fees as we were granted entrance to the park.  It was here that we learned that our itinerary was being changed from 8 days and 7 nights to 7 days and 6 nights.  This would mean that we would start the hike at about 10,000 ft. and climb to about 11,500 ft. bypassing the rainforest the first day instead of starting at about 7,500 ft. and going up to about 9,500 ft.  

We arrived at the Londorosi Gate where we enjoyed a wonderful lunch consisting of hot soup and sandwiches.  We loaded back on the bus and continued up the road bypassing the rain forest and arrived in the Shira Plateau with moorland vegetation.   We had not been able to see Mt. Kilimanjaro yet as we were in a layer of clouds preventing us from seeing the peak that we would be climbing.  As we rounded a curve in the road we cleared the cloud layer and there before us was the majesty of Mt. Kilimanjaro.  It was one of those ah ha moments where silence is the best response.  When the bus stopped we eagerly disembarked ready to hit the trail.  Of course, there was the obligatory group photo op and then we donned our daypacks and were ready to get going.  Abel lifted my pack and asked what all I had in it as it seemed too heavy.  He began taking items out of my pack and putting them into his pack and that was the routine every day for the rest of the trek. It was late in the afternoon and the mountain was glowing in the sunlight.  The words pole, pole mean slowly, slowly and this was the slogan each day of the hike.  Due to the altitude, one must go slowly so as not to tax the body in the thin air.  I felt we were traveling at a snails pace and wanted to go just a little faster as I was afraid we would be hiking in the dark if we continued so slowly.  The trail was not very difficult, but it was very, very dusty.  Jo was in shorts and soon her legs were coated with a thick layer of dirt.  We had to cross two small ravines with small streams to get to Shira Camp I and just as we arrived the sky was pink with a beautiful sunset.

 

Jo and I decided to tent together and set about unpacking our gear in the dark, in a very tiny space and without getting dirt everywhere.  It was a taxing undertaking and one that I did not master the entire trek and by the end of the trip it was definitely the pebble in my shoe for the journey.  Once settled we ventured to the mess tent for a delightful hot supper and conversation around the table.  On our way back to our tent we were amazed at the brilliance of the stars and enjoyed a view of the Milky Way I had not seen in many years since pack backing in southern California in my twenties.  We crawled into our sleeping bags and tried to sleep.  I think I was awake by 3:00 a.m. with restlessness, excitement, and the sounds of camp.  Thus was the beginning of the journey to the summit of Mt. Kilimanjaro.

 © Copyright 2023. Lucretia Pintacuda. All rights reserved.